Fall  2009

Spring Flowers        
 
 
ACT Newsletter
  
In This Issue
10 Tips for Decreasing Perseveration on Preferred Topics
Fear of Routine Medical Exams
Lucas' Story
 
Attention! New ACT Social Skills Groups are Beginning Soon!
~~~ 
An ACT Social Skills Group is a great place for your child to practice his or her social skills!  Fun, exciting and creative group activities are led by expereinced ACT therapists and supervisors.  Please contact the front office for more information! 

(805)529-5265
Quick Links
 
 
 
Archived ACT Newsletters
 
 
 
 
Join Our Mailing List 
 
Forward to a Friend 
Dear ACT readers,
 
ACT welcomes you to another issue of the ACT Newsletter!  In this Fall Issue we are presenting an article that describes behavior techniques that successfully decreases medical exam fears in children on the autism spectrum.  Additionally, we are offering you another tool for your behaivor toolbox: 10 Tips for Decreasing Perseveration on Preferred Topics During Conversation.  We are also going to introduce you to another fun kid, Lucas!
 
Also, check out the link to the Helping Hands Family Behavior Support Group.  This is a new service offered by ACT that provides behavior management consultation and support to parents whose children are otherwise typically developing but have behavioral challenges.  You never know who might need a Helping Hand.
 
We hope you enjoy this issue of the ACT Newsletter!
 
10 Tips for Decreasing Perseveration on Preferred Topics During Conversation

 
Aimee FioreGood conversation skills are essential for meaningful social interaction.  Children with High Functioning Autism (HFA) and Asperger's Syndrome (AS) have a unique set of challenges in the areas of social communication and conversation with peers.  This article will give you specific tips for developing your child's conversation skills.  For children with HFA and AS, the main challenges during conversations include being able to talk about a large variety of topics, focusing on peers' ideas, restricting the amount of time spent talking about themselves and their preferred topics, and being able to read the body language of their conversation partners.
 
Most children with HFA and AS have topics or areas of interest about which they are extremely knowledgeable.  A child may be interested in topics like vacuums, stamps, or pens.  These are interests that are less likely to be shared by peers.  Even when a child's interest is more common (e.g., dinosaurs, trains, or sports), he or she will learn more about the topic than most peers.  It is important to help your child have conversations about a wider variety of topics so he or she will feel confident with peers and be included in social interactions.  You can practice these skills by having daily conversations with your child about a variety of topics.  
 
Below are 10 simple tips for expanding your child's conversation skills.
 
Tip #1 - Start with topics that are similar to your child's preferred topic, and gradually make the topics more varied
.  For example, if your child's preferred topic is Star Wars, you can begin by having conversations about planets or astronauts.
 
Tip #2 - Reinforce conversations about less preferred topics with fun conversations about your child's favorite topic.
  For example, discuss Halloween for 2 minutes, then the Roman Empire for 3 minutes.  To start, the less preferred conversation should be shorter, and the preferred one longer.  Over time, the less preferred conversation can be increased and the preferred conversation decreased. 
 
Tip #3 - Make discussing less preferred topics more interesting by allowing your child to pick a topic from another area of interest or a choice of three
.  Or - you, your child, and a sibling/peer can each write down 5 fun or interesting ideas, throw them into a box or hat, and take turns choosing topics to talk about from there.  That way your child's preferred topics will be naturally mixed in with his less preferred topics, and he will understand that other people have different areas of interest.
 
Tip #4 - Give your child a clear and measurable "rule" for conversations.
  For example, "Say one thing about yourself, then ask your friend a question about herself," or, "Wait until your friend has said three things about his topic, then you can change the subject."  Practice these skills daily in conversations with your child, and remind your child of the rules before she interacts with peers.  Remember not to set too many rules; you don't want to overwhelm your child.  Instead, set one rule, let your child master that rule, and then add another rule to the mix.
 
Tip #5 - Restrict the amount of time your child can engage in preferred conversations.
  For example, allow conversation about a preferred topic only twice per day for five minutes each time.  Be sure to engage in those conversations with gusto when it's time for them!  At other times, remind your child of this guideline and encourage conversations about other interesting topics.  Don't forget to reinforce your child for remembering and trying!
 
Tip #6 - If your child is "bursting" to talk about a preferred topic, and you want to limit how frequently he discusses that topic, give your child a specific time when the topic can be discussed (e.g., "We aren't going to talk about dinosaurs right now, but we can during lunch time").
  It also works to have your child journal (write things down) when he is "dying" to share something and it's not the right time.  
 
Tip #7 - Make a chart of different types of body language and their translation, review it with your child, and give it to your child to keep or post somewhere discreet. 
This will allow your child to consult it at a later date if necessary.  For example, looking away = not interested; smiling = interested.  Be sure to demonstrate different types of body language for your child during conversations, and discuss what each gesture and facial expression means.  For example, you can nod while your child is talking, and explain that this means that you're interested in the conversation.  Yawning may mean that the listener is bored, looking at a watch may mean that the listener is in a hurry, and crossed arms might mean that the listener is upset. Observe your family and friends for a day or two to come up with a comprehensive list of things to teach, or check out the internet for suggestions.
 
Tip #8 - Practice what to do in social situations when peers might be losing interest or want to change the subject.
  For example, if a friend is looking down, teach your child to ask, "What do you want to talk about?"
 
Tip #9 - Have your child pick a favorite friend from school and list a few things she knows about that friend; use the list to brainstorm about topics that the friend might enjoy discussing
.  Prepare your child to ask questions or make comments to her friend based on the things she thinks her friend might like to talk about.  This will help expand your child's "theory of mind" - her understanding of other people's thoughts and preferences.  
 
Tip #10 - Prepare your child to join and leave conversations involving a group of peers.
  Write down the 4 or 5 steps involved in starting, joining, and ending conversations and changing the subject.  For example, the steps involved in joining a conversation are:
 
1.    Listen to the topic being discussed.
2.    Think of something related to say or ask.
3.    Wait for a pause in the conversation.
4.    Make your statement or ask your question.
5.    Look at the person who responds, listen to
      what she says, and respond to her.
 
If you use these tips and practice conversation skills daily, your child will be able to talk about a wider variety of topics, focus on her peers' ideas, restrict discussing highly preferred but repetitive topics, and understand body language better.
 
Good Luck!
Fear of Routine Medical Exams in Children with Autism Spectrum Disorders 
(Gillis, Natof, Lockshin & Romanczyk, 2009) 
Aimee Fiore 
As many parents may have experienced, children with Autism can have a very difficult time with medical examinations.  It can be a significant source of frustration for both parents and children.  This article describes two studies.  The first is an assessment of the prevalence of medical examination fears among children with Autism Spectrum Disorders.  The second is an evaluation of a behavioral intervention (graduated in vivo exposure and reinforced practice) designed to reduce a child's fear of medical visits.
 
Research demonstrates that anxiety disorders occur often in children with Autism.  Researchers have examined fears related to the environment and procedures associated with medical exams in typically developing children; however, studies investigating fears in children with Autism have not looked specifically at medical exams.  Authors Knapp, Barrett, Groden, and Groden (1992) reported that there are many similarities between the types of fears seen in typical children and those with Autism.  A fear of medical exams is one of these standard fears.   
 
The first study in this article examines the specific types of fears that children with Autism have in relation to medical exams.  The study found that most parents reported that medical visits were significantly challenging, and that most children were upset by having their ears and throats examined and blood drawn.  Fewer children were upset by having their hearts and breathing examined with a stethoscope, or by the use of a knee reflex hammer. 
The authors argue that finding ways to decrease specific fears of medical exams in children with Autism is extremely important.  A large portion of children in this study attend medical visits 2 to 3 times per year.  One third of the children have a chronic medical condition that warrants frequent medical visits.  If a child refuses to let the doctor perform necessary procedures, it can make health conditions worse and harm the child.
 
The second study in this article examined behavioral treatments that can help reduce a child's fear of medical exams.  This study included 18 children who attended a special school for children with Autism Spectrum Disorders.  The goal of the study was to implement specific behavioral strategies with these 18 children and determine if the strategies decreased the children's fear of medical exams. 
 
Evaluation took place in the school nurse's office.  All of the children were initially given a brief physical exam to determine how they typically reacted to medical examination, and establish baseline data.  During the initial physical exam, the children's observable behaviors (e.g., refusal to enter the nurse's office, pushing medical instruments away, crying, and running away) were used to measure each child's level of fear.  Throughout the baseline exams, the authors noted which parts of the exam each child feared the most.  A hierarchy of fears was created for every child.   
 
After baseline behavior was established, the intervention phase began.  During the intervention phase, the children were exposed to the parts of the medical exam that they feared according to their hierarchy.  The steps were introduced in the order that they would naturally occur during the medical exam.  For example, if a child walked to the nurse's office without anxiety, but feared the stethoscope, tolerating the stethoscope would be the first step addressed for that child.  This child would not participate in the remainder of the exam until he could tolerate the stethoscope without anxiety.
 
During each treatment session, each child's behavior was rated.  A score of 0 was neutral, scores of +1, +2, and +3 were positive, and scores of -1, -2, and -3 were negative (indicating anxiety).  When a child received a neutral or positive score for a particular step, he was given a preferred toy as reinforcement for having participated in that step without anxiety.  When a child received a neutral or positive score on two consecutive sessions, that step was considered mastered, and the child moved on to the next step in the fear hierarchy.  Treatment was continued until most children could sit through an entire exam without anxiety.  A follow up exam was conducted several months later to see if the children had maintained their tolerance of medical exams. 
 
Results indicated that after 25 treatment sessions, 15 of the 18 children were able to tolerate the medical exam across two consecutive weeks with no anxiety.  Intervention continued for the remaining 3 children for 62 sessions.  These 3 children made progress, but ended up not completing all of the steps.  Results indicated that there was a correlation between how many steps were feared at the beginning of treatment and how many sessions it took to complete all of the steps successfully.  In other words, children who feared fewer steps took fewer sessions to complete the steps successfully, and vice versa.  The 3 children who did not complete all of the steps in the fear hierarchy had significantly more fears than the children who did complete all of the steps.  The authors note that these 3 children would likely have been able to complete all of the steps at some point.  During follow-up, 14 of the original 18 children were assessed.  Ten out of the 14 demonstrated no fear of the medical exam.  The remaining 4 children showed fear for only one specific instrument or procedure.  The authors comment that the results suggest that graduated in vivo exposure and reinforced practice are useful tools for reducing fear of medical exams.  They also note that more studies should be conducted to confirm their findings, and dental exam fears should be studied, as well.
 
Lucas' Story 

Aimee Fiore 
ACT would like to introduce its readers to another very cool kid.  Lucas is a bright 11 year old boy who loves dinosaurs, Pokeman, riding his scooter, and downloading "apps" for his iphone.  His mother describes him as enthusiastic, "prehistoric", and adorable.  Today, Lucas is a happy and unique fifth grader who has a thirst for knowledge and is learning many new skills.  However, when Lucas was two years old, his mother recalls that he had almost no language.  She was concerned that he wasn't talking and brought this to the attention of his pediatrician.  At the time, the doctor insisted that Lucas would eventually begin to talk and recommended speech therapy for him. 
 
Lucas began speech therapy at two years of age and continued until he was six.  His language skills slowly improved across those four years.  Lucas' mother was concerned about other behaviors, as well.  Lucas had meltdowns when he didn't get something he wanted right away.  He had difficulty expressing frustration and anxiety, and having tantrums was his way of communicating those feelings.  Lucas' mother reports that it would take a long time to calm him down once he became upset.  He was also a picky eater, eating only 3 or 4 preferred foods.  
 
At school, Lucas had a very difficult time making friends and
navigating social situations.  Academically, Lucas appeared to be above average in many areas; however, he had trouble with reading.  Despite his difficulty with reading, Lucas was able to learn tremendous amounts of information about his most preferred subjects - dinosaurs and prehistoric times. 
 
Lucas' mother recalls wondering throughout the years if he had Autism or Asperger's Syndrome.  She points out that Lucas has always been a very affectionate and loving child, who seemed to want to have friends and be social.  This aspect of his personality was contradictory to what she had heard about children with Autism Spectrum Disorders (ASDs).  Lucas was finally assessed by a psychologist who was familiar with ASDs.  He was diagnosed with High Functioning Autism when he was in the third grade. 
 
Shortly after his diagnosis, Lucas began to have behavior therapy with ACT.  Throughout the past two years Lucas has been learning many new skills in therapy.  Socially, he is learning how to "read" other people's body language, have conversations about a wider variety of topics, use his own body language to show others what he is feeling, and understand complex socials situations.  He is also learning how to identify anxiety and frustration, express these feelings appropriately, and use self-management tools to calm himself down.  Lucas is being taught to better manage his time, plan and organize activities, and practice effective study skills.  He has also participated in ACT social skills groups, where he worked on generalizing skills he was learning in therapy and practicing social skills with his peers.
 
Lucas' mother reports that he rarely has meltdowns anymore.  He is better able to think rationally about situations and use healthy coping techniques to calm himself down.  Because of the coping strategies, she says that she sees a significant decrease in Lucas' daily anxiety.  She comments that his social skills are improving, as well.  She and her husband are extremely proud of Lucas' efforts and progress.  Lucas will be starting middle school next year, and his mother looks forward to seeing how he will learn and grow during his teenage years!
We hope that you have enjoyed this issue of ACT's Newsletter and found it useful!  Please contact us if there are topics you would like to see addressed in the newsletter in the future.  You may suggest topics by sending an email to: Sarah.Pashalides@AutismCenterforTreatment.com  
 
Look for our next issue in Winter, 2010!